Diagnosed with Metastatic Sarcoma (MPNST)
I have a Soft Tissue Spindle Cell Sarcoma (21 May 10). On first admission Dr Bissett (ARI) confirmed that this was in fact a Malignant Peripheral Nerve Sheath Tumour (MPNST). Basically this is a Neurofibromatosis tumour that has turned malignant. The MPNST is on my chest wall and has metatastasised (spread) to my lungs.
First attempt at chemo with Doxorubicin & Ifosfamide didnt work.
Since had 5 'fractions' of Radiotherapy, now waiting to see what effect that had.
Primary MPNST is a staggering 10cm. Not sure how many lung tumours I have but they have been described as 'several' and are 1-2cm.
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